Monday 28 December 2015

Post #34 - More Internet Woes

From reading my blog you'll no doubt notice that I'm both a sensitive and somewhat arsey individual at times. Whether that's due to my Asperger's or something deeply embedded into my personality, I don't know? It does annoy me though.
I've recently decided to utilise my written ability
 to its fullest extent by complaining about substandard items or customer service. Mind you, I've been doing that for years, but now I've stepped it up a gear. Some people may accuse me of taking it all too seriously or getting 'het up' (yeah, that's you bleedin' Mumsnet!) But it's a big deal for me.

Friday 25 December 2015

Post #33 - Christmas For Aspies

Like many Aspies I find dealing with Christmas to be problematic.  I think that it's the expectation that women have to deal with an awful lot of stuff and provide a welcoming atmosphere for their family and guests.  I won't got into huge amounts of detail about my own situation, but in a nutshell, I have a neurotypical younger brother who refuses to host Christmas at his house, choosing to work instead.  This means that myself, husband and son tend to be hospitable whilst he swans off and earns double overtime at our expense.  Don't get me wrong, I really appreciate my parents, but I can become easily resentful about this situation.  I am currently upstairs escaping it all.

Next year it's just us three and no bloody turkey.  I don't mind the bird itself, but it's the whole rigmarole of everything else.

Wednesday 23 December 2015

Post #32 - Internet Forum Jargon

Although I've been on the interweb for many a year now, I haven't learned all of the various acronyms and shortcuts, but here's a handy aide memoir courtesy of Mumsnet: http://www.mumsnet.com/info/acronyms

I particularly appreciate this particular entry:

YABOS
you are being over-sensitive
That's about right!

Tuesday 22 December 2015

Post #31 - Forum Flouncing

Studying the way that Aspies use the internet is a strange dichotomy - it's a great place to share information, gossip and discuss one's 'special interests' in greater detail than you ever would with friends whom you actually know and physically exist in real life (IRL).  That said, as with many things in regard to dealing with life on the spectrum, there's a huge BUT.  That is, you just cannot work out people's intentions via their posts and certainly aspects such as tone, intonation and sarcasm can be very easily misconstrued.  I am also pretty darn sure that many men don't like women to be funnier than they are and this often leads to aggressive behaviour centring around a sexist theme.

Ha! That's what I think anyway.  I'll be back after a bit.  A fellow Aspie told me a very similar story about his involvement on a popular Sci-Fi website, so I know that I'm not alone in both my thoughts and opinions and boy do I have a lot of those!

Friday 18 December 2015

Post #30 - Two Years of Knowing [that I have autism]

Today marks the two-year anniversary of me being aware that I may be autistic.  The trigger point came at my son's school Christmas concert back in December 2013, which I've written about in this earlier post: http://faspie.blogspot.co.uk/2015_05_01_archive.html

It's been a very strange twenty-four months, that's for sure.  I've had loads of time off of work, more than I've ever taken in all of my twenty-one years of full and part-time employment.  I do feel that I know more about myself though, which can only be a good thing and although some days are good and others bad, I know that knowledge is power and things will begin to improve in the future.

Tuesday 15 December 2015

Post #29 - Dealing With Seasonal Illnesses

My cold began on Saturday, it's now much worse.  I'm staying in the warm though and amusing myself by listening to audiobooks and of course, podcasts.  I'm pretty darn sure that I caught it from my son though as we tend to have the same constitution.  At least it'll get me out of attending my son's Cub Christmas Production tomorrow - I'm sorry to miss it in many ways, but after the December 2013 incident I dislike such things.

Sunday 6 December 2015

Sunday 15 November 2015

Post #27: Depression, Medication and Masking

When I write the term 'Behind The Mask' it puts me in mind of the 1980s song by guitar superhero Eric 'Slowhand' Clapton. There's an excellent lecture on the contents of the aforementioned rock star's bookcase which I once saw performed at one of the Boring Conferences, but seriously though ....

Masking is no joke: the act of hiding one's autistic traits is difficult, tiring and ultimately destructive. I can no longer do it: ergo I cannot function in certain atmospheres. "Why should you?" You may ask? "People are more aware of autism these days?" Well, they're not, they're really not.



I've been on antidepressants for the past eighteen months now: initially on Setraline, but that made me far too weary. Six months in my GP switched me to Fluoxitine; I take 40mg daily, but over the summer tried to reduce it to 20mg. On medical advice I'm back to 40mg.

Wednesday 11 November 2015

Post #26 - What Does That Even Mean?

I find that many of the issues surrounding being an Aspie stem from miscommunication and misunderstanding.  Yesterday I received this email from the head of my choir and have cut and pasted this bizarre sentence from it:

The concert is a "bring your own food and drink (booze)" to drink and eat during the concert - the tickets are on the door and are going to be £8 for adults and £5 for concessions. 

Eh?  Does that mean I have to bring a sports bag full of wine and mince pies?  Will we all be munching throughout the performance and spitting crumbs at one another?  Like many things in life - je ne comprehend pas.

Tuesday 10 November 2015

Post #25 - A (Working) Day In The Life (Of An Aspie) - The Afternoon: Part Two

So, it's nearing home time.  Pretty much always I'll leave the office at 16:58, well unless there's anything urgent pressing, but I have my trusty work laptop with me in my heavy bag, which since the change from rucksack to laptop/messenger bag, has been killing my shoulder.  I'll walk back to the mainline station - a different one to the one I arrived on this morning (such is the wonder of London connections!)  It's a busy and very touristy area, so there are always crowds blocking my path or taking impromptu snaps of famous landmarks.  The one thing I can't fathom is why there are always so many people hanging around drinking on the pavement outside pubs?  I mean, I'm more than aware that the smoking ban has forced people out in the open air, but surely paying £5 for a pint of lager and having to sup it in the discomfort of the street isn't much fun, is it?



I dislike bicycles who fail to stop at pedestrian crossings too - it's one of my biggest bugbears.  Please obey the road safety laws and stop scaring people trying to cross the road.



I like to arrive at the terminus early and find a spot near a side barrier to stop people crashing into me whilst they're running for their trains.  Once the train appears on the destination board then it's a scramble for the platform.  I like to sit in the two-seat spaces as there's nobody in front of you and my legs can be stretched out accordingly.  Once I had a guy with a bag of fish sat in front of me who wouldn't budge at all.  My journey sometimes takes up to forty minutes to complete, so my legs were stiff by the end of it.

I arrive at my station and walk back home.  

Post #24 - A (Working) Day In The Life (Of An Aspie) - The Afternoon: Part One

After lunch it's usually straight into another meeting.  If they're small, then so much the better.  In the past I've had team meetings during this period and depending whom I'm working with or for, they're either good or bad.  I used to detest the ones which went around the delegates and asked them what they were working on - whatever I tended to say wasn't quite good enough.

Sometimes I'll have a terrible post postprandial dip at about 14:30 and will struggle to keep my eyes open.  It often depends what antidepressant I'm on and whether there's any natural light streaming into the room. PowerPoint presentations are the worst - have you ever heard of the term 'Death By PowerPoint?' Well, I feel like these images below and don't even get me started on people who ask questions following a two hour presentation.....


Post #23 - A (Working) Day In The Life (Of An Aspie) - The Morning: Part Two

Now, I like 1:1 meetings with people I know - they're rarely a surprise and I'm much more effective in controlled environments.  Most of my interactions aren't like that though.  In the main office I keep getting distracted, I cannot help it.  I don't like distracting others, work has changed over the last five or so years and not for the better.  I cannot tell what others are thinking or trying to imply - it's almost impossible for me.  The place where I work employs some, well, let's just say - colourful characters and as a result, it's doubly hard for me to cope with them.



These are some of the things I cannot bear as a result of being in an office environment:

  • Somebody banging their keyboard like they're squashing an army of invisible ants
  • Broken equipment being dumped on my desk during whilst I'm not there
  • Sudden shouts and hollering at the monitor
  • Unplugged wiring
  • A constant untreated hacking cough (I don't just mean somebody with a cold - worse than that..
  • People holding a conversation over my head
  • Hot food/fish sandwiches etc
That said, I acknowledge that I can also be annoying too, by doing these things:
  • Sudden shrieking bursts of unexplained laughter
  • Inability to moderate my volume
  • Odd or eccentric conversations/pieces of trivia
  • Non sequiturs 


I like to get out and about at lunchtime - sometimes I'll do a circuit around the lake of a nearby park, but otherwise I'll leave the building and to ensure that I gain at least ten to fifteen minutes' worth of activity.  If I don't do this it means that there's no specific division between morning and afternoon and in the autumn and winter months humans need light and air, even if it is of the central London kind!

I return to the office and eat my lunch - it's almost always of a packed variety - sandwiches, crisps, fruit etc.  I have a hiatus hernia which has been exacerbated by weight and this often causes painful digestive problems if I'm stressed out.  Last week I passed another team who are located further up the corridor and they were all seated and consuming a fish and chip lunch - it smelt very strongly indeed.

Post #22 - A (Working) Day In The Life (Of An Aspie) - The Morning: Part One

If people don't really understand how it feels like to be a working person with Asperger Syndrome combined with depression, I hope that these series of posts helps. I've split them into four because it's much easier to read and certainly less boring!  It's hard, it's so darn hard and I'm slowly becoming housebound as a result, but writing about my issues makes it much more cathartic.

It's a work day, I know this because I will have woken extremely early and lain in bed, the duvet clamped around me, like an oversized sausage roll. At 7:30 I'll get into the shower and wash, because nobody, I repeat nobody, wants a stinky colleague do they?  Teeth, make-up and dress - downstairs, coffee and breakfast. Usually my son is downstairs playing obscure YouTube videos on his pad - being autistic too, he's usually favouring something obscure, such as a series of the quiz Fifteen to One dating back to 1988.




At 8:12 precisely I'll leave the house and walk the thirteen minute journey to the station. I'll pass all of the parked cars which clog up my road because their owners are too mean to pay for the station car park.  En route, I'll try to avoid walking behind someone smoking a cigarette or in front of anyone with clacking heels - it's a sensory thing and it bothers me, although it wouldn't concern the vast majority of the population.

Arriving at the station I always stand in the most suitable space to be directly in front of the last carriage of eight's rear doors. I like to sit in the exact middle of the car, which is the facing window seat of the middle bank of the six seat set. This normally means that I'll not have to sit directly beside or opposite anyone and as my journey concludes at the London terminus, I'm not getting in anyone's way.  I'll listen to a podcast or an audiobook and if all else fails, I'll flick through a copy of the Metro.



The area I work in has been a gigantic building site for ages now and it's a really unpleasant environment as a result.  There are huge wire barricades here, there and everywhere and everybody's so pushy.  I follow the stream of commuter traffic along the road and then approach my building.  I used to be able to climb up to my floor, but my fitness level has decreased over the past year.

When I arrive at my allotted desk, I worry whether someone else may be sitting there.  It's situated in the middle of the work area away from any windows.  The desk I sit on is smaller than the standard work area and this means if anybody sits next to me that they'll be far too close and my whole left side will tense up as a result.  Considering all of this has happened prior to me even logging on, what hope is there for me as an employee?

I'm part-time and a flexible worker.  Does this mean that my immediate colleagues believe that I'm a lazy slacker as a result?

Thursday 22 October 2015

Post #21 - That Was (Nearly) The Week That Was (Tricky)

On Monday I wrote the following sentence: The routine's out already, this won't be a great week, I can just feel it.

Yeah, that's about right so far.  It hasn't been horrendous, but well, it's not been that great either.  I won't bore you with the details, I'll save that for my scandalous memoirs (really?) but I'm not feeling that great.  Like many others I often forget to read the detail in messages/emails/missives etc and forgot to purchase my son a new Cub jumper for his 'swim up' from Beavers on Monday.  


Work's been tricky and motivation, low.  I am due to give a five minute presentation about my experiences of having autism at a 'Celebrating Diversity' event in mid-November, but I'm just hoping that I'll not make a huge tit of myself.  My line manager says that it's akin to standing in a bus stop in your underwear.  I don't want that, quite frankly, nobody would. Even if I was to wear a Miss Mary of Sweden corselette.  There's a bus stop near work which people mainly use as a smoking shelter, so I wouldn't wish to hang around in there either.  

Monday 19 October 2015

Post #20 - The Best Laid Plans

My son woke up this morning complaining of an itching body and my husband took him to the Doctor's accordingly.  He has developed an allergy, well, another one as he already cannot tolerate strawberries.  We'll have to begin to keep a food diary.  My husband already has a wheat/gluten allergy, so as you can imagine, it's a bundle of laughs in our kitchen.

I was planning to do the ironing today, but with an ASC/ADHD child around, this concerns me, so I had to potter around instead.  My son insisted on throwing my nightclothes around my bedroom and hooking my bra onto the curtain rail.  Nice.  He's lost a gold star for his behaviour.

The routine's out already, this won't be a great week, I can just feel it.

Saturday 17 October 2015

Post #19 - Selling Things Online If You're An Aspie

Now, don't get me wrong, I do enjoy selling stuff online, but the pitfalls are certainly there.  I cannot recall whether I have already stated on this blog that my brand spanking new Android mobile phone was placed in the back pocket of my jeans when I was upset at work - I duly went into a cubicle and whoosh - it dropped down the toilet.  Cue tears of rage and no, it didn't work any longer and nobody appeared to be able to fix it.

So, as it was a Pay As You Go (PAYG) smartphone with no insurance (wail!) I swapped back to my previous model and bought a brand spanking one online (with enhanced memory power..)  I wondered whether I could sell this one as a 'parts only for spares, water damaged' kind of listing on a popular internet auction site?  So I tried.  Me being me, I described and photographed it very thoroughly and stated everything about its background.  Cue: loads of people asking for buy it now (BIN) prices and other such things.  I took it off sale after a few days and tried selling via the mobile recycling company Envirofone  who promised me some money back for it.  I packaged it all up in the free envelope and off it went.  That didn't stop the automatic harrassing emails from them after about 24 hours though - thank you for that.  Anyway, a few days later they offered me the laughable sum of £26.01 so I requested the phone's return.

I made the decision to re-list it on the internet auction site; was I right?  Almost immediately I had people asking to see the receipt in case it was stolen, more offers to sell off of the site (which is against the rules and other such things.)  Last night took the proverbial biscuit - basically a potential buyer enquired whether it was an insurance fraud.  Nice.  When I challenged her she soon became nasty, but put in a bid anyway.  I removed the bid and contacted the auction company's help centre who were really, well, helpful.

So, anyway, I've gone to another company's recycling department and have requested trade ins for two old smartphones and an old tablet computer.  If they're good then I'll try selling this one on.

The conclusion of this tale is: Aspies like rules and they tend to tell the truth and this is often a toxic combination when selling items online.  I like it when it works, but when it doesn't, boy can it be distressing.


Thursday 15 October 2015

Post #18 - Workplace Assessment, ICU, But At Least The Cat's Back

Today was my workplace assessment for autism via NAS.  The person doing the report was great, but like everything, it's often difficult to re-live some of your past life and career.  I provided a copy of both my NHS and private autism assessments, my CV which details all of my various job moves(!) plus a list of competencies, a detailed answer to the questions posed in the proforma and many other things.  Phew!  It was exhausting to say the least.  She spoke to me, my line manager and a colleague.  The report's due out in the next few weeks and I'll have to discuss the contents with my line manager whilst sitting down (well, she didn't overtly state sitting down, but you know what I mean - maybe a hot beverage?)

My BIL's been moved to the Intensive Care Unit (ICU) because of his breathing.  He's in safe hands though and there isn't a great deal we can do.  My hubby's visiting him tomorrow.

Yay, my cat returned last night at approximately 20:08.  Hubby was collecting my son from Cubs and heard a pitiful meowing as they passed a neighbour's drive and lo and behold - there was a hungry black and white cat there.  I was very pleased to see her. 

Wednesday 14 October 2015

Post #17 - Hospitalised Relatives and A Missing Cat

I won't got into great detail about the background of my family situation, but in a nutshell, my husband has a 90-year-old mother with Vascular Dementia who is now in a residential home and a mentally and physically disabled brother who is in sheltered accommodation.  I explain much more in another of my blogs, Caring For The Carers: https://www.blogger.com/blogger.g?blogID=744390122599049054#overview/src=dashboard

On Monday afternoon my husband received a call from one of the carers in my brother-in-law's (BIL)'s sheltered accommodation stating that the latter had experienced difficulty breathing and had been taken to A&E at a north London hospital.  He was later admitted; hubby went to see him on Tuesday and my BIL was hooked up to masks, tubes and all sorts - he seemed quite sick.  The Doctor stated that he had fluid in his lungs and his scolosis was making it difficult for his lungs to operate effectively. 

This morning my MIL's care home rang hubby to state that she wasn't well, was refusing to leave her room and becoming more aggressive and at other times, tearful.  We agreed to write a detailed account of her medical history to date, like we did with my BIL.

To top it all, my youngish black and white cat Sophie's gone missing.  I've long wondered whether she was getting her Felix elsewhere, but we haven't seen her since we put her out last night.  Apparently the insurance states that you have to contact the Vet within five days of disappearance.  She's chipped and was vaccinated recently.  Pah!

Sunday 11 October 2015

Post #16 - Getting Stuff Done Around The House


Now, most Mothers know how difficult it can be to keep on top of things and boy, do I have a huge issue with this?  Most of the houses around here are absolutely spotless, mine's not bad, but isn't what you'd call pristine.  There seems to be a great deal of pressure around here to conform, that's partly why I don't want to invite many people round, well, I don't mind trusted friends, but you know what I mean?



This afternoon I sorted out the seagrass baskets in the bathroom (pictured) and feel very pleased with myself.  Sometimes I forget just how many cosmetics we have in the house.

Monday 5 October 2015

Post #15 - Eurenesis, The School Run and Fat Felines

Last night at about 4am my DH (Darling Husband - it's a Mumsnet contraction I believe) was woken by our DS (Darling Son) who had removed his night nappy and consequently wet the bed. I didn't wake: after a series of sleepless nights I'm dead to the world at the moment, but I will be dealing with the washing and ironing later. We have seen a nurse at the local hospital about this and were given a booklet. I think I'll write about this in greater detail once I've formulated a system  (you've got to have a system - thank you Harry Hill!)


These are my Nike Air Rifts (aka the Cloven hooves) which I like to wear on the school run. They're very comfortable, especially as I replaced the smelly insoles with memory foam ones.

Now, I know that it's a really 80s thing, but this waist bag I purchased from eBay is really useful on the school run. It holds my keys and phone as well as a small purse. Yes, I physically walk DS to school, I wish more parents around here would do the same and there would be fewer cars on the road. I do understand if it's a really long way or you're driving directly to work afterwards, but most return back home and then probably go to the gym. Pffft.


Finally, my youngest moggie has gone to the Vet with DH. It's her annual checkup. She's quite a porky puss and has a dangerous Felix addiction, so it'll probably be the Kitty Slimfast for her.








Sunday 4 October 2015

Post #14 - Having A Son On The Spectrum - Education, Education, Education

As mentioned in post #1 I have a son on the Spectrum.  He's currently eight-years-old and attends a mainstream school.  I do worry though, as do most parents, but believe me, I'm concerned about his future.  This is a borough with selective education and I know that he probably won't be able to even sit the selection tests, let alone pass them.  There are a couple of large Comprehensives in the area and believe me, he's not going there - I physically shudder at the thought of his blond head being flushed down the toilet.

There is another option - a faith school with an excellent reputation which is located about three miles away.  One of the women in my Choir has three children who are pupils there.  According to the SENCO they have a discrete Autism Unit which would be a perfect fit.  We go to church sporadically and I'll admit that I've never really approved of those who only worship to ensure that their offspring gain a place in a good school, but now the time is fast approaching, I wonder whether to jump on the bandwagon - after all, I was brought up a Christian (despite never being formally Christened - my Father's decision apparently) and attended Sunday School and Pathfinders way into my teens.

It's so difficult, but considering that he's currently in Year 4, I really need to start actually doing something, don't I?

Saturday 3 October 2015

Post #13 - ASC, Driving and Studying

Now I know that there's probably no link here, but my extreme anxiety means that I can no longer drive a car. I first learnt to drive when I was seventeen back in the 1990s, but had a bit of a horrible experience with an old, pervy and irracable instructor. I reported him to the DVLA by the way.

When I was eighteen I tried again; this time with a younger family man who drove a dual control Ford Fiesta. After about seventy (yes, that's seven-o) lessons I passed first time. I was nineteen. Now, my grandfather had a Mini which he'd barely used since purchasing it new in 1977 and I attempted to drive that. I didn't like it: the gears were too stiff and the vehicle seemed too low.

In the late 1990s I gained a local job; instead of traipsing up to London on the train I could catch one bus to work. Unfortunately the bus was rubbish, so I decided to give motoring another go. I went out and bought a second-hand Nissan Micra and invested in some refresher lessons. It was truly amazing and it would be an understatement to say that I absolutely adored that Japanese runaround. I even drove to Suffolk in it.

I met the man who would later become my husband in early 2000 and he couldn't drive (at the time - he can now!) I left work, started University as a mature student the very same year. I was based in The University of East Anglia in Norwich. I sold my car and my academic career ended after two miserable months on campus as I couldn't cope.

Epilogue: I graduated from Birkbeck College in 2005 with a History BA. Great things can be achieved in the right environment.

Post #12 - More Insomnia + Choir Musings

Oh for goodness sake, this is driving me crazy now. It's nearly 3:30am and I cannot sleep.  Again. Yes I know that I shouldn't be on a screen, but hey, writing's good - yeah?

I'm a member of a local choir. It's fun, I adore singing and was studying for my Grade 4 with the choir leader/music teacher until my fragile mental health forced me to stop. I started singing back in 2010; I used to sing in a church choir as a child but gave it up for decades. I began with a few beginners' group courses and then joined a central London choir for about eighteen months in total and then my work ensemble. Actually, I think I'll detail my experiences on one of my other (many) blogs.

Right: ASC. Singing's great for the soul, but I do struggle somewhat with the logistics involved. For example,  I walk the three miles there as I haven't driven for many years now because of extreme anxiety. I often get a lift back, but I don't wish to be a burden. The room itself, which is the music department of a grammar school can get very crowded and last week one of the other altos was behind me and her continual chewing and talking was vexing me. She's a nice woman and we've spoken many times; she even has a grandchild with ASC. It's not easy for me though as some of the other choristers are flat; this is because you don't have to audition to get in, which is a double-edged sword.

Oh dear, I sound like a right old moaner don't I? I'm not, honestly.

Thursday 1 October 2015

Post #11 - Diversity and Inclusion at Work

It's currently after midnight and I cannot sleep.  This sometimes happens to me, so I either read something really boring (such as the Radio Times's many articles about a) Benedict Cumberbatch, b) Doctor Who or c) Bake Off), listen to audiobooks or write.  This time I have chosen the third option.

Work - it's a funny old concept for an Aspie isn't it?  Apparently only 15% of people on the Spectrum are in full-time employment, which is pretty low if you stop and think about it.  Why?  Well, from what I know, it's a minefield out there and employers find it hard to place Aspies in roles and the staff themselves, well they struggle, that's for sure.  That's one of the main reasons why I'm working on a communication/training session to inform both the ASC staff themselves as well as their line management.  I've a lot to achieve in the next few months, but you know, I don't think I'm being corny by saying that it's hugely interesting and amazingly rewarding.

This afternoon I was interviewed by our Internal Communications team regarding my role as Chair of the Asperger Syndrome Group at work.  I cannot really say who I work for, nor elaborate much further, but let's just say that it's the public sector and they are still very good at accommodating staff with additional needs.  I hope that I gave a good account of myself during the interview; I was wearing turquoise leggings under my Trinny and Susannah (via eBay from their exclusive QVC range fashion fact fans!) dress and it's too short on me, hence the need for leg coverage.  You don't really need to know that do you?  Oh, I'm an Aspie, forgive me - my mind shoots off in all different directions at times.

I also attended a 'casting call' to find enough people to fulfill the roles for other Diversity projects.  There weren't many people present (well, apart from the panel and the organiser) and there was talk of a representative from RADA to come in and provide some voice/projection coaching, so I'm definitely up for that one.  I hope it's glasses on a lanyard time!

*Edit* - it never happened - I became too ill to participate.

Friday 25 September 2015

Post #10 - Mumsnet: Neurodiversity support thread: Women with suspected/self-diagnosed/diagnosed ASC & ADHD

Back in late 2013 when I was first trying to work out whether I had Asperger Syndrome I ventured upon a thread on Mumsnet and posted a few times under my old username.  I changed my username recently after the cyber attack on the site and because I wanted to be known by a different moniker.

Anyway, here's a link to the new thread: http://www.mumsnet.com/Talk/special_needs_recommendations/2399562-Neurodiversity-support-thread-Women-with-suspected-self-diagnosed-diagnosed-ASC-ADHD?msgid=56752860#56752860  I'm finding it an absolutely excellent source of support.  There are a number of amazing posters on there and the way I learn about everything Aspie is to read recommended textbooks, blogs and forum posts.  It's ironic in many ways, since being diagnosed as an Aspie I can't get enough of reading about the condition and how it affects people, especially women.

I've never really known what I wanted to be in life - some people knew at school that they wanted to be a nurse/bus driver/builder etc or go into the family business, but believe me when I tell you that I never really did.  Like many people growing up in the 1980s, we inputted our details into a huge computer and the associated print out suggested that we may wish to be a bramble picker or a shop assistant.  I drifted into a career in the public sector, but it wasn't a great fit for me.  Now, I know that I want to work in the field of Autism in some way.

Thursday 24 September 2015

Post #9 - Work Diversity Blog



This is a redacted version of a blog post I wrote for my employer's Diversity and Inclusion Campaign 2015:

*Edit* - I'm pretty sure that it never went out as I became too ill to participate in the campaign.  



Diversity Blog – Asperger Syndrome

I have been employed within the public sector for the last twenty-one years. My son had an early diagnosis of being on the Autistic Spectrum and then an additional assessment also noted he had Attention Deficit Hyperactivity Disorder (ADHD).  Having seen his traits it finally dawned on me that maybe I was also on the Autistic Spectrum?  As time went on, I was inspired to seek my own formal medical diagnosis, obtained via the Occupational Health team earlier this year.

The support available to staff who have disabilities and long term health conditions and who are employed here is great. By attending the various internal support groups I have learnt so much more about all things disability now than I did, a year ago and my knowledge is increasing.  I enjoy taking a positive and proactive stance to ensure that the rights of disabled staff are respected as much as possible.  As well as the main network there are a number of sub-groups supporting specific communities, such as the Asperger Syndrome Group, which I chair and the associated Parents/Carers of Children with Autism, chaired a colleague.  In addition to this, as well as support for many other disabilities, there’s the Mental Health Group.  Depression often occurs alongside autism, because the brain struggles to process the world around you.  I had struggled in the past and the support I have received here from colleagues has been essential to my wellbeing.

Generally, we do a great job of supporting disabled staff, however, in my opinion, there is still room for improvement and quite a lot can still be done to make our workplace more disability accessible, both in terms of the awareness and understanding that colleagues have of the impacts of disabilities and long term health conditions on colleagues. For example, if you have autism, you can find it even more difficult to fully understand the unwritten rules of the workplace.  We often struggle to interpret the unwritten rules of the office and sometimes miss the point of what we are being told.

Whilst the term Asperger Syndrome no longer formally exists as a medical diagnosis, it provides those of us at work with a good terms of reference.  I particularly like the term ‘Aspie’ and I’ve written the first draft of An Aspie’s Guide To Social Media and am planning other additions to the list such as An Aspie’s Guide To Work and An Aspie’s Guide to Travel.  If my work helps other people in similar situations then I’m happy.  I’ve also made some great friends through the support network and as a result, will be getting more involved with volunteering for the National Autistic Society (NAS).

Wednesday 23 September 2015

Post #8 - Aspies and Depression

The medical term for this kind of incidence is a 'co-morbid', but this isn't particularly popular with many people for quite obvious reasons.  Morbidity tends to be something which isn't particularly sought after, a bit like the term 'morbidly obese'.  Anyway, 'related condition' sounds much better.  I recall the first time I became depressed - I was about nine-years-old at the time and it occurred just after Christmas when I'd been suffering from a chest infection.  It was pretty horrible.

Yes, depression or clinical depression if you want to be 100% accurate.  I think this is why many people with Autism/AS tend to be mis-diagnosed with bipolar disorder or other conditions such as Borderline Personality Disorder or BPD, although that moniker tends to make me think of Madonna's early 80s hit.  I think it's mostly because an Aspie's world is a confusing one and trying to confirm to what many may call a 'social norm' is difficult and incredibly draining.  I also believe that the onset of autumn makes me topple into Seasonally Affected Disorder (SAD).  Hey ho - plenty of walking around outside for me tomorrow.

Thursday 17 September 2015

Post #7 - Friendships

Like many Aspies I struggle somewhat to make friends and always have.  I'm most comfortable in male company and by that I mean geeky blokes and not sporty examples of malehood replete with fake tan, loafers and hair gel.  Yes, I can be judgemental, but believe me, those TOWIE clones don't go for geeky Faspies either.

I have had quite a few examples in my past of friends becoming far too close and obsessed by me.  This happened when I was at an all-girls secondary school where a classmate soon turned from close friend to sworn enemy and tried to push me into oncoming traffic.  Later on, as an adult a similar thing happened when a woman I met at an antenatal class became far too close and began to try and take over my life.  This time I was warned off by my husband and parents.  I think it's happening again though, but I don't really quite how to deal with it without upsetting the person concerned. 

That said, when I like somebody I can become bloody obsessed myself.  I have to be sat down and spoken to about it.  There's very few grey areas with us Aspies is there? 

Monday 7 September 2015

Post #6 - What It Feels Like For An (Aspie) Girl

Having a young son with ASC I can see some definite parallels with my own behaviour.  It's extremely geeky, that's for sure.  The obsessions sometimes become ridiculous - my current ones are as follows:
Oh dear, that makes me sound pretty tedious doesn't it?  I'm not, honest - well, I am a little bit.  

Saturday 5 September 2015

Post #5 - Post Diagnosis

When the draft report of private diagnosis popped into my inbox I must admit that it made interesting reading and by that, well, it was a bit like being slapped around the face with a rancid wet fish.  Being a typical Aspie, I zoomed in on the negative aspects such that I 'presented younger than my chronological age' and 'my voice had a montone air'.  Yes, even now in middle age I don't really like being criticised as it eats away at my soul.  I did question certain phrases and conclusions via email and on the phone and yes, they got duly amended.

That said, I'm an Aspie and therefore I'm disabled.  I really never thought that I had 'special needs', I really didn't.  I guess that many people don't really.  It's like going into mourning in many ways; certain careers are verboten now and my life felt and indeed still feels, strange.

Thursday 3 September 2015

Post #4 - The Private Diagnosis

Now, I won't provide too many details on who actually carried out my private diagnosis, but let's just say that he's well renowned in his field.  It took the form of three separate interactions: the first being at his private practice where he talked me through my notes and asked me to elaborate on various points.  As ever, I was accompanied by my husband who's always a constant source of support.  I recall becoming tearful as I often do when probed about my past; I wish that I didn't, but that's just me.  I was deemed serious enough to qualify to the next stage of the process.  The Psychologist asked me to write a detailed account of my life to date and my husband was requested to do the same.  On reflection and chats with my mentor have found this to be far too detailed, but it was my opinion that he would extract certain elements out of my life story, not just cut and paste it in!

I also had to complete the AQ, EQ and SQ questionnaires - there's a link to these, plus a whole load of other ASC material here: http://www.autismresearchcentre.com/arc_tests  I cannot recall my exact scores on each and quite frankly I don't really wish to provide them at this stage, but the results all fell within the 'yes, you're definitely an Aspie' range.

The day of the diagnosis fell and it took place at work which is located in central London.  I booked a meeting room large enough for three, unfortunately all of the meeting rooms in the building have paper thin walls and you could hear a mouse cough next door.  So, it was supposed to take up to five hours.  Yes, really.  We set up and worked through a series of tests, but I couldn't concentrate as there was somebody in the office next door shouting down the telephone.  We had to ask him to desist, but I couldn't fully engage, I rarely can.

The puzzle element was difficult for me and I didn't recognise all of the weird facial expressions shown on the Psychologist's iPad - in fact, they closely resembled one of my friends, which was nice, albeit bizarre.  You'll be pleased to learn that I excelled at the definitions of words and my voice became monotone at various points. 

The conclusion: after a mere four hours(!) was that yes, I have Asperger Syndrome and no, it no longer exists as part of the DSM V:  http://www.autism.org.uk/about-autism/all-about-diagnosis/changes-to-diagnostic-criteria/qanda-dsm-5.aspx  Huh!  I'm an Aspie, no doubt about it.

Sunday 23 August 2015

Post #3 - The NHS Asperger Syndrome Diagnosis

A very caring contact arranged a posting back in my home Department and a few weeks later I was working once more.  I had no post, but was 'actively seeking one'.  A private diagnosis, via HR was also arranged. Bizarrely, both the NHS and Private ones coincided and I undertook both within a month of one another.

The NHS one was far simpler.  I brought along my husband for support and my Mother for background evidence of my strange childhood.  Now, it's fair to say that I don't really get on with my Mother as she's a very negative depressive person who fails to seek assistance in dealing with those particular conditions - she's also pretty certainly got full blown Asperger Syndrome or strong traits of it herself.  It took place in a medical centre near a pub which had some bad memories for me - basically, I hadn't wished to go to a relative's hen night and my Mother pretty much forced me to attend.  Anyway, the Doctor had a list of traits written down and asked me to elaborate on them, which I did.  My Mother was suitably vindictive whilst discussing my past, wrapping everything up in an 'unreasonable child' cocoon.  I burst into tears and was pretty upset.

The conclusion was, after about an hour and a half was that I had Asperger Syndrome.  I was pleased with the findings.

Sunday 16 August 2015

Post #2 - When You Know Something's Wrong, But You Cannot Prove It

Following on from my initial chat with the GP, I waited about four months to have a pre-assessment session with my local Mental Health Team.  This took place on a Thursday morning in the same satellite hospital my son was diagnosed in.  It was basically me, my husband and a social worker who had a series of set questions to ask me.  I'll admit it, I became very emotional throughout, especially when probed about my past history.  The concluding part was to complete the AQ test, you know, this one: http://aspergerstest.net/aq-test/  I scored within the clinical range for ASD and was referred on towards a full diagnosis.  I was informed that adult aspies don't really have any support available and that it would take absolutely ages.  Fair enough, this is the NHS, they are overburdened to say the least.

Image result for aq test

My mental health suffered during the months which followed.  I told my brusque boss, who couldn't have given a flying fig about autism and thought that it was just an excuse for me to slack off.  I walked out of my job with stress, I couldn't stop crying - I'd had enough.  My GP was sympathetic and I was prescribed antidepressants - Setraline to be precise.  At home I recuperated, often walking around the garden listening to Radio 4's Desert Island Discs on podcast to block out any extraneous noise - Aspies hate such things.  On the advice of the GP I self-referred for Cognitive Behaviour Therapy (CBT) and had an introductory session.  It was interesting, but a whole load of the other delegates were mute and the others, well without breaking confidences, one was very aggressive towards me indeed when I posed a question about women feeling more guilt than men tend to.  Nice.

I returned to work a few weeks later, initially once a week.  Things were fine at first, but once I upped my hours once more, it began to slide.  The same problems arose: my performance was criticised and my self-esteem was at an all time low.  I walked out of the job once again a few months later, I'd had enough, I wanted to leave, permanently.  The GP signed me off once more and I was referred for counselling via the work programme.  I fell out with the first counsellor, some things just don't click.


Sunday 3 May 2015

Post #1 - How I Guessed That I Was An Aspie

I was always a strange child.  Growing up in the late 1970s/1980s in probably the most obscure suburb that London could ever muster was difficult because everyone conformed.  They still do.  I did move away for a few years but I returned, pulled by the lure of reasonably priced property, excellent housing stock (the largest preponderance of semi-detached housing in the UK apparently) and having family in the vicinity.  Never mind, it's quiet and I have a house with high ceilings plus my third bedroom's a good size.  The picture below isn't my house by the way....


I won't bore you with my life story, because I can't really be bothered and it doesn't hugely matter for the sake of this blog.  Needless to say, that I was an odd girl, growing up as the middle child and only girl sandwiched between two brothers (not literally, sliced loaves are never that big.)  My policeman father died when I was five-years-old and my elder brother was to commit suicide when he was twenty-one.  Yeah, tragic I guess.  Add to the mix a mother with a brain tumour and other sad events then you've got the makings of a misery memoir, but I'm not a fan of wallowing in it.  Plus I was never whacked around the head with a spade.

I was a solitary girl with strange interests and an introverted nature.  I shouted at worms and was obsessed with breeding guinea pigs alongside many other pedestrian pastimes.  Friends were a bit alien to me and I enjoyed my own company and quite frankly, I still do.

Fast forward to the year 2013.  My only child, Edward, known as Ted, had previously been diagnosed with Autism Spectrum Disorder (ASD) in 2011 when he was four years of age and later with ADHD.  Myself and my neurotypical husband were wondering where it had all come from - maybe from his side as he had a physically and mentally impaired brother?  No, apparently.

My husband had an accident with rendered him on crutches so I had to attend the School Christmas Concert alone.  It is held in a large church located close to the school, so I got there early.  To cut a long story short I decided to question another parent's use of a 10inch iPad to record the whole thing on, thus blocking the view of other audience members and it all got a bit heated.  The school wanted to take action against me, but my husband explained the background to it all.



Later on we decided that I had ASD and completed all of the online tests.  They emerged in the clinical region of the condition.